CARE-NMD: Improving care for Duchenne muscular dystrophy

Description: Improving care for Duchenne muscular dystrophy

Keywords: CARE-NMD, muscular dystrophy, dystrophy, Duchenne, Duchenne muscular dystrophy, DMD, muscle disease, care, care standards, standards of care, multidisciplinary, quality of life, consensus, guidelines, best practice, international consensus, patient, registries, care sites, TREAT-NMD, health service research, care indicator, rare disease, European, EAHC, DG SANCO, muscle, muscle function, wasting, dystrophin, heart, cardiac, breathing, risks, life expectancy, important, problems, complications, diagnosis, steroids, corticosteroids, physiotherapy, PT, monitoring, support, management, surgery, United Kingdom, Germany, Denmark, Bulgaria, Czech Republic, Hungary, Poland

Tags: care, nmd, duchenne, dystrophy, muscular, improving, standards, patient, registries, treat, international, trial, site, involved, life, consensus, dmd, quality, guide, clinicians, events, news, organisations, registry, chip, home, bio, partners, family, project, info, improve, expectancy, european, best, practice, health, muscle,

Care-nmd.eu

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CARE-NMD.EU - Site Location
Country/Flag	Germany
City/Region/Zip Code	Freiburg, Baden-Wurttemberg, 79102
Organization	Universitaetsklinikum Freiburg
Internet Service Provider	Universitaet Stuttgart