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maroteaux-lamy.com
Maroteaux-Lamy.com, complete online resource for MPS VI
Welcome to Maroteaux-Lamy.com, your complete online resource promoting awareness and diagnosis of Maroteaux-Lamy syndrome (MPS VI), to advance optimal management of this rare disease and improve the lives of the people who are touched by it.
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Similar Sites: mpsdisorders.com
bookbudo.com
Toutes les oeuvres de Roland J. Maroteaux
Toutes les œuvres écrites et éditées (une quarantaine d’ouvrages) par le budoka philosophe Roland Jean Maroteaux, expert 9e dan en arts martiaux, au renom international.Il s’agit d’ouvrages de grande qualité, non vendus en librairie, aussi bien techniques, philosophiques, qu’autobiographiques sur des thèmes éclectiques : romans, chevalerie, essais, nouvelles, poésies, etc..Des livres rares, mais aussi des DVD et revues associatives sur l’école Takeda-ryu. Roland J. Maroteaux est membre de la Société Nationale des Auteurs Indépendants (SNAI), éditorialiste de la revue « Aïkigoshindo Kaïshi », membre du comité directeur de la Société scientifique internationale des arts martiaux & sports de combat (Pologne).
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naglazyme.biz
NAGLAZYME: Maroteaux-Lamy Syndrome (MPS VI) Treatment
NAGLAZYME is the first and only Maroteaux-Lamy Syndrome (MPS VI) Treatment. Learn more about NAGLAZYME and MPS IV here at the official site.
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Similar Sites: naglazyme.com - naglazyme.net - naglazyme.org
mpsvi.net
MPSVI Community
The MPS VI Community is now on Facebook! Make friends, share your ideas, plans and hopes on how to live with MPS VI. Click here to join the Living with MPS VI group on Facebook
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holdenshope.com
Welcome to Holden's Hope!
A site to promote MPS awareness. MPS VI, also known as mucopolysaccharidosis VI or Maroteaux-Lamy syndrome is the type of MPS Holden struggles with every day.
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mps-austria.at
Gesellschaft für Mukopolysaccharidosen und ähnliche Erkrankungen
Gesellschaft für Mukopolysaccharidosen und ähnliche Erkrankungen
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aikijutsucotedazur.com
Aikijutsu Cote D'Azur - Articles
AïkiJutsu côtes d'azur est le site d'une association d'art martiaux japonais de l'école Takeda Ryu Maroto Ha.
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mucopolisaccaridosi.it
ASSOCIAZIONE ITALIANA MUCOPOLISACCARIDOSI (AIMPS ONLUS) - Benvenuti, Welcome!
mps, aimps, mucopolisaccaridosi, mucolipidosi,sialidosi, fucosidosi, malattie rare, disabile, disabilit, bambini, hunter, hurler, morquio, sanfilippo, associazione, associazioni, lamy, maroteaux, mps1, mps2, mps3, mps4, mps6,mps 1, mps 2, mps 3, mps 4, mps 6, mps i, mps ii, mps iii, mps iv, mucopolisaccaridi
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aimps.it
ASSOCIAZIONE ITALIANA MUCOPOLISACCARIDOSI (ONLUS) - Benvenuti...Wellcome!
mucopolisaccaridosi, mucopolycaccharides, MPS, Hunter, Hurler, Sheie, Hurler Sheie, Morquio, Maroteaux Lamy, GM1, GM2, Tay Sachs, Sandoff, Landing, Mucolipidosi, malattie rare, mannosidosi, fucosidosi, aspartilglicosaminuria, A.I.MPS, associazioni, onlus, volontariato, farmaci orfani, pediatria, famiglia, anestesia, ernia inguinale, raffreddore, cifosi, gadget, email, e-mail, mail, notiziario, leggi, disabilità, disabili, diversamente abili, handicap, ausili, problemi, salute, tonsille, tonsilliti, adenoidi, eventi, event, donazioni, beneficenza, aiuto, help, farmaci, orfani, affido, genitori, genitorialità, famiglia, provincia, regione, comune, provincie, regioni, comuni, enti, enti locali, istituzioni, ospedali, malattia, congresii, world congress, links, mappa, map, news, newsletter, volontari, volontariato, associazionismo, soldi, donazioni, euro, sms, carta Sì, it, bilancio, statuto, atto costitutivo, privacy, depressione, neurologia, fegato, milza, cuore, respirazione, lisosomiali, cellule, dna, malattie genetiche, metabolismo, grave, dottori, professori, comitato medico, comitato scientifico, aifa, iss, ministero della salute, verbale, gazzetta ufficiale, ufficio stampa, referenti, regionali, provinciali, primavera, estate, autunno, inverno, neuropsichiartia infantile, comunicazione, org, free, freeware, kit, internet, content, management, contentmanagement, community, com, site, sites, forum, forums
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mpsyhematologicasraras.org
Segundo Congreso de MPS y Enfermedades Hematológicas Raras | "Más iguales que distintos"
mpsyhematologicasraras mps logo congreso segundo hematológicas síndrome enfermedades raras más iguales que distintos programa para pacientes biomarin imss mail pediatria novartis shire corportiva genzyme globalg día jajax maroteaux von del vii iii primer lisosomal hierro zzservicios patrocinado por comments content
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